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Your generosity fuels our progress.

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Because of your support, we can deliver on our mission to improve the lives of people with PKU and pursue a cure. Your generosity ensures we can continue offering valuable PKU programming while investing in the most impactful research and initiatives. Your donation supports:

Accelerating PKU research activities in pursuit of a cure.

  • Annual grant awards for research projects that promote advances in treatment and management of PKU. Grants
  • The PKU Patient Registry, which has identified the need for a no-cost, NPKUA-sponsored genetic testing program and neurocognitive research. Registry

Engaging programming for individuals and families living with PKU.

  • Support and development resources across all life-stages, including monthly community calls and a mentor program. Community engagement
  • Awareness campaigns aimed towards improving the lives of individuals with PKU and improving treatment access barriers on local and national levels. Advocacy

Matching Gifts

You can increase the impact of your donation. Many employers offer matching gift programs and will match the charitable contributions or volunteer hours made by their employees. Some companies will even match gifts made by retirees and/or spouses. Type in your employer’s name in the search field below to begin. Thank you for taking the time to check.

Matching Gift and Volunteer Grant information provided by
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If your company is eligible, you may need to complete the matching gift process via your company’s online portal or request a matching gift form from your employer and send it with your gift. Send your completed matching gift forms or agency online verification request to:

National PKU Alliance
1802 Vernon Street, NW #PMB2389
Washington, DC 20009

For more information about donations, please contact Susie Gray at susie@npkua.org

All donations to the NPKUA are tax deductible as allowed by law. Please consult your tax accountant. The NPKUA tax ID number is 26-2849140.