The Newborn Screening Save Lives Act was originally passed by Congress in 2008.  The bill established national newborn screening guidelines and helped facilitate comprehensive newborn screening in every state.  The original bill had funds appropriated to carry out the intent of the act.  These funds expire in April 2013.

The Newborn Screening Saves Lives Reauthorization Act will be introduced soon in Congress to extend the key programs of the 2008 bill. 

It’s key provisions will include funding for critical federal programs that provide assistance to states to improve and expand their newborn screening programs; support parent and provider education; and ensure laboratory quality and surveillance for newborn screening. 

Check back here frequently for more information, action alerts and how you can help.