U.S. House and Senate passes Fiscal Year 2017 National Defense Authorization Act expanding TRICARE coverage of medical foods for PKU! Thank you to everyone who helped with this important advocacy effort. We look forward to building on this success to achieve access to treatment for all!
Help us build support for the Medical Nutrition Equity Act! We need your help to find U.S. Senator Bob Casey a Republican co-sponsor for the Medical Nutrition Equity Act. Read the full action alert here to learn more about the MNEA and ask your U.S. Senators to sign-on as original co-sponsors!
Meet with members of Congress in local offices! U.S. Senators and Representatives return to their home states throughout the year. Contact their office staff to setup a local appointment. A face-to-face meeting is a great way to talk with them about PKU and why coverage of physician prescribed medical foods - medical formulas and low protein modified foods is so important. Let them know about the draft Medical Nutrition Equity Act (MNEA) sponsored by Senator Bob Casey and ask for their support!
Click here to find the names and contact information for your congressional members. It will list the D.C. contact information along with their website. To schedule a DC or local in-district meeting, call the D.C. office and ask for the scheduler. To discuss PKU and medical foods coverage over the phone, ask to speak with the health legislative assistant (HLA).
Phone script for calling your U.S. Represtatives
Phone script for calling your U.S. Senators
General Tips On How To Contact Congress
ACMG Efforts Lead to AMA’s Support of Health Coverage for Medical Food Products
GMDI Position Statement on Medical Foods
Important Documents To Share With Congressional Members:
MNEA Informational Flyer
U.S. Senate PKU Awareness Resolution (S. Res 627)
American Medical Association (AMA) Resolution 122 – Health Coverage for Nutritional Products for Inborn Errors of Metabolism
Click here for an After Visit Summary Form to send to the NPKUA