Lifting the Limits for PKU at the Creighton Farms Invitational

The Creighton Farms Invitational held June 24-26, 2017 raised $1.4 Million throughout the weekend fundraiser.  The benefactors this year included the Nicklaus Children’s Health Care Foundation (NCHCF) and the National PKU Alliance (NPKUA).  The weekend included a welcome party and concert with the Celebrity All Star Band out of Atlanta with 200 guests attending, a practice round of golf for all golf participants, an exclusive cocktail reception for top sponsors at the home of Jack and Barbara Nicklaus, a dinner and auction with 280 attending that brought in outstanding numbers on the live auction and fund-a-need paddle raise, and a pro-am golf tournament hosting 23 teams matched up with a pro golfer or celebrity on each team.

This opportunity to partner with the Nicklaus Children’s Health Care Foundation has opened new doors for PKU awareness and fundraising!  We cannot thank Jerry and Jill Elkins enough for all of their support and commitment as a PKU family that is helping us to Lift the Limits for PKU!

About Nicklaus Children’s Health Care Foundation

Jack and Barbara Nicklaus founded the Nicklaus Children’s Health Care Foundation in 2004, in an effort to provide families access to world-class pediatric health care in their own communities. Collaborating with Nicklaus Children’s Hospital and pediatric hospitals across the country, the Foundation has made a tremendous impact by supporting innovative programs focused on the diagnosis, treatment and prevention of childhood illnesses. For more information, nchcf.org

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Click here to support Lifting the Limits for PKU or make checks payable to: National PKU Alliance, PO Box 1872, Eau Claire, WI 54702

EVENT PHOTOS

Cana Winery Event Photos
Private Cocktail Reception
Dinner and Auction at the Salamander Photos
Golf Tournament

BENEFICIARIES


Founded by Jack and Barbara Nicklaus in 2004, the Foundation provides access to world-class health care for all children and supports innovative programs focused on diagnosis, treatment and prevention of childhood illness. 

The National PKU Alliance works to improve the lives of individuals with PKU and pursue a cure.  PKU is a rare brain-threatening disease that affects about 16,500 children and adults in the U.S.  The NPKUA provides information, support and advocacy for families living with PKU and invests in targeted peer reviewed research for the development of better therapies and a cure.


Hope for Hudson
At the birth of a new child, parents have such grand hopes in all that they will become.  No one hopes for a rare disease that without unimaginable dietary restrictions, they would become developmentally, intellectually, and neurologically disabled in less than a year.  When Hudson was born in December 2013, the state-mandated newborn screening test identified elevated levels in phenylalanine indicating that he most likely was affected with PKU.  Further testing confirmed the diagnosis for life.

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