2018 NPKUA CONFERENCE
BREAKOUT SESSIONS

2018 NPKUA Conference General Sessions
2018 NPKUA Conference Scientific Poster Session

Saturday, July 7, 2018


Empowering vs. Enabling: Taking a Coach-Approach to Parenting kids with PKU
Elaine Taylor-Klause, Parent Coach & Co-Founder, Impact ADAD
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An Adult's Guide for Returning to a Diet on a Budget
Ashley Park, MS, RD, LD; Saran Gurung and Mary Lauren Salvatore, MPH, CHES
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Nurture You, Too: Self-Care Solutions for Caregivers
Carla Smith, PhD, LCSW, LMFT
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Advocacy
Kristen Vanags, NPKUA Advocacy Chair, and Sara Chamberlin, How Much Phe
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Strategies To Shake Off Diet Related Anxiety, including Simplified Diet
Stephanie Hacker, MS, RD/N, LD/N, CNSC
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PKU and Cognitive Development
Dr. Deborah Bilder
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5 Tricks to Running You Affiliate Organization
Don Souhrada
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Management of PKU in Early Years

Rani H. Singh, PhD, RD, LD
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Weight Control and Exercise
Stephanie Hacker, MS, RD/N, LD/N, CNSC
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Lifting the Limits For PKU Update
Michelle Pernsteiner, NPKUA Event & Development Coordinator; Michele Francis and Emele Porter, LTL Denver Co-chairs and Kathy Friedl, Auction Chair

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Importance and Small Fundraisers
Michelle Pernsteiner, NPKUA Event & Development Coordinator
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Meal Planning with Schools
Lynn Paolella, Cambrooke Therapeutics; Kristen Vanags, Georgia PKU Connect
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What about me?: Helping Siblings Strike a Balance
Dr. Carla Smith, PhD, LMFT
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Make Your Voices Heard? The Inborn Errors of Metabolism Steakholder Network
Matt Edick, PhD, Project Lead; Jame Pilditch, MPA, Lead Patient Partner; Sandy LaPrad, IBEMCSN member; and Patient Partners Kelly Meyers and Staci Kasprzyk
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Picnic Table Talk: Managing the PKU Diet for Kids in Social Settings
Jessica Williamson, RD and Meg Stone, RD
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Maternal PKU
Rani H. Singh, PhD, RD, LD and Michelle Hobbs, RD
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Overcoming Obstacles - Sports & Beyond
Stephanie Hacker, MS, RD/N, LD/N, CNSC and Brittany Holmes, MSN, FNP-BC
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Why Local Orgs. Are Important - We Nee You!
Lindsey Coltraine, Georgia PKU Connect; Staci Kasprzyk, MACPAD; and Amy Oliver, IPAD
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Resources and Strategies for an Easy and Tasty PKU Diet
Sarah Chamberlin, How Much Phe and Brenda Winiarski, Cook for Love
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Conference Sponsors


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