The National PKU Alliance (NPKUA) has been vital in giving the PKU community a stronger voice since 2008, when local PKU organizations united together to form a national presence. Our mission is to improve the lives of individuals associated with PKU and pursue a cure. The NPKUA funds areas that have the most significant returns for those who live with PKU: advocacy, education, support and research. 

One of our biggest accomplishments since inception of the NPKUA, is the creation of an esteemed Scientific Advisory Board to create a process for receiving and evaluating proposals for funding. We now have invested over $2 million in PKU research. 

When you support the NPKUA, you give thousands a better opportunity for critical health support and education, promising research initiatives and a voice in the national rare-disease community. Thank you for your gift! 


Did you know that many companies, big and small, may match donations made to the National PKU Alliance by their employees, employee spouses and retirees? There is no additional cost to you, and it could double, even triple the value of your contribution. 

To find out if your employer has a donation matching program, check with your human resources or public relations department. If your company has a matching program, please mail or e-mail the form to us and we will process it for you. Our tax ID number is 26-2849140. 

Send donations by mail to: National PKU Alliance, PO Box 1872, Eau Claire, WI 54702

For more information on donations, please call 715-495-4008 or email 

All donations to the NPKUA are tax deductible as allowed by law. Please consult with your tax accountant.