The National PKU Alliance’s mission is to improve the lives of individuals with PKU and pursue a cure.  The NPKUA provides information and support to adults and families, advocates for the reimbursement of medical foods and invests in targeted and peer reviewed research for the development of new therapies and a future cure for PKU.

The NPKUA was formed in 2008 by parents, grandparents, and individuals across the country just like you.

We are the first national non-profit organization to unite adults, families, regional and statewide PKU organizations, the medical community and PKU-friendly businesses to make a difference in the lives of people with PKU.

Click here to learn more...>

PKU PATIENT REGISTRY
Click here to learn more..>

BIOMARIN RELEASES RESULTS OF PHASE 3 TRIALS FOR NEW PKU TREATMENT

Click here to read about the study...>

NPKUA PATIENT SURVEY:
91% SAY NEW TREATMENTS ARE IMPORTANT

Click here for White Paper...>

MEDICAL NUTRITION EQUITY ACT (H.R. 2587 AND S. 1194)
See how you can take action today...>

NPKUA TEEN & ADULT WEBSITE
Visit AdultswithPKU.org...>


NPKUA CONFERENCE REGISTRATION

The 2018 National PKU Conference will be held July 5-8, 2018 in Atlanta, GA. The conference promises three days of stimulating sessions, social networking and fun!

Conference registration is now open! We are offering Early Bird pricing and discounted rates for our members/donors. Early Bird pricing will only be good from January 2, 2018 through April 30, 2018. Beginning May 1, 2018 registration fees will increase $100.


 

 

 

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