The National PKU Alliance works to improve the lives of families and individuals associated with PKU through research, support, education and advocacy, while ultimately seeking a cure.

The NPKUA was formed in 2008 by parents, grandparents, and individuals across the country just like you.

We are the first national non-profit organization to unite adults, families, regional and statewide PKU organizations, the medical community and PKU-friendly businesses to make a difference in the lives of people with PKU.

Click here to learn more...>
BIOMARIN RELEASES RESULTS OF PHASE 3 TRIALS FOR NEW PKU TREATMENT
Click here to read about the study...>

NPKUA PATIENT SURVEY:
91% SAY NEW TREATMENTS ARE IMPORTANT

Click here for White Paper...>

LIFTING THE LIMITS FOR PKU
Click here to learn more...>

TAKE ACTION NOW:
COVERAGE FOR MEDICAL FOODS

Click here to for the story...>

NPKUA TEEN & ADULT WEBSITE
Visit AdultswithPKU.org...>

2015 NPKUA ANNUAL REPORT
Click here for the Annual Report...>

2016 NPKUA RESEARCH FLYER
Click here for the 2016 Research Flyer...>

HELP LEAD THE WAY TO A BRIGHTER FUTURE!

We are thrilled to announce the launch of the PKU Patient Registry and invite you to enroll today!

The PKU Patient Registry is the single most powerful tool we have as a community to advance PKU research. Patient registries have consistently led to the development of improved treatments for rare diseases. Registries help develop better standards of care and dramatically improve patient outcomes, even in the absence of new therapies.

Read the full Press Release.

Learn more and enroll today!

 

 

 

|