The National PKU Alliance’s mission is to improve the lives of individuals with PKU and pursue a cure.  The NPKUA provides information and support to adults and families, advocates for the reimbursement of medical foods and invests in targeted and peer reviewed research for the development of new therapies and a future cure for PKU.

The NPKUA was formed in 2008 by parents, grandparents, and individuals across the country just like you.

We are the first national non-profit organization to unite adults, families, regional and statewide PKU organizations, the medical community and PKU-friendly businesses to make a difference in the lives of people with PKU.

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10 YEARS OF PROGRESS
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PKU PATIENT REGISTRY
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NPKUA 2017 ANNUAL REPORT
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NPKUA PATIENT SURVEY:
91% SAY NEW TREATMENTS ARE IMPORTANT
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MEDICAL NUTRITION EQUITY ACT (H.R. 2587 AND S. 1194)
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NPKUA TEEN & ADULT WEBSITE
Visit AdultswithPKU.org...>


CALL FOR 2019 RESEARCH PROPOSALS AND FELLOWSHIPS

The National PKU Alliance (NPKUA) works to improve the lives of individuals with phenylketonuria (PKU) and pursue a cure. The organization provides funding to advance the science of PKU by funding the most promising research that will lead to new therapy discoveries and a cure. Since 2010, the organization has invested close to $3 million in research that has led to new knowledge, the acceleration of new therapies and supported pilot studies that have been able to leverage larger federal funding. 

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