The National PKU Alliance works to improve the lives of families and individuals associated with PKU through research, support, education and advocacy, while ultimately seeking a cure.

The NPKUA was formed in 2008 by parents, grandparents, and individuals across the country just like you.

We are the first national non-profit organization to unite adults, families, regional and statewide PKU organizations, the medical community and PKU-friendly businesses to make a difference in the lives of people with PKU.

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PKU PATIENT REGISTRY
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BIOMARIN RELEASES RESULTS OF PHASE 3 TRIALS FOR NEW PKU TREATMENT

Click here to read about the study...>

NPKUA PATIENT SURVEY:
91% SAY NEW TREATMENTS ARE IMPORTANT

Click here for White Paper...>

MEDICAL NUTRITION EQUITY ACT (H.R. 2587 AND S. 1194)
See how you can take action today...>

NPKUA TEEN & ADULT WEBSITE
Visit AdultswithPKU.org...>


CALL FOR 2018 RESEARCH PROPOSALS AND FELLOWSHIPS

The National PKU Alliance (NPKUA) works to improve the lives of individuals with phenylketonuria (PKU) and pursue a cure. The organization provides funding to advance the science of PKU by funding the most promising research that will lead to new therapy discoveries and a cure. Since 2010, the organization has invested close to $3 million in research that has led to new knowledge, the acceleration of new therapies and supported pilot studies that have been able to leverage larger federal funding.  

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