The National PKU Alliance works to improve the lives of families and individuals associated with PKU through research, support, education and advocacy, while ultimately seeking a cure.

The NPKUA was formed in 2008 by parents, grandparents, and individuals across the country just like you.

We are the first national non-profit organization to unite adults, families, regional and statewide PKU organizations, the medical community and PKU-friendly businesses to make a difference in the lives of people with PKU.

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BIOMARIN RELEASES RESULTS OF PHASE 3 TRIALS FOR NEW PKU TREATMENT
Click here to read about the study...>

NPKUA PATIENT SURVEY:
91% SAY NEW TREATMENTS ARE IMPORTANT

Click here for White Paper...>

LIFTING THE LIMITS FOR PKU
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TAKE ACTION NOW:
COVERAGE FOR MEDICAL FOODS

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NPKUA TEEN & ADULT WEBSITE
Visit AdultswithPKU.org...>

2016 NPKUA ANNUAL REPORT
Click here for the Annual Report...>

PKU PATIENT REGISTRY
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2017 NPKUA RESEARCH AWARDS

The last eight years have seen great strides in finding ways to improve treatment for PKU. We are pleased to share with you the 2017 NPKUA Research Awards. The annually funded research awards are made possible by our member organizations, Lifting the Limits for PKU national events and individuals who raise funds each year on the local level for research. Thank you for helping make these awards possible as we work towards improving treatment options for PKU and accelerating the timeline for a cure.

Click here for full summaries of the 2017 research projects. 

 

 

 

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