Let's Get Moving for Medical Foods!

We need your help to pass the Medical Foods Equity Act in Congress! This bill would require all health insurance and federal programs to cover the cost of medical foods (formula and foods modified to be low in protein) for PKU.  Below are all the documents related to this legislation that would require all insurance companies to cover the cost of medical foods for PKU and other inborn errors of metabolism. The Senate Bill number is S.311 and the House Bill Number is HR. 1311.  Help us make a difference for the future of PKU! TAKE ACTION NOW! Contact your Congressional members today and ask them to co-sponsor the Medical Foods Equity Act!

To look up your House Representative and Senators, click HERE.

CLICK HERE To view the sign on letter that Senator Kerry will be sending to HHS Secretary Sebelius on the importance of including medical foods in the Essential Health Benefits Guidance for the treatment of inborn errors of metabolism. 

Talking Points for your Legislators

Sample Letter to Legislators
Advocacy Guide for House
Advocacy Guide for Senate
Medical Foods Equity Act Senate Dear Colleague
Medical Food Equity Act House Dear Colleague
Medical Foods Equity Act Endorsing Organizations
Cost and State Coverage Charts
Progression of PKU

Click HERE to download a PDF of our informative guide for meeting with your legislators.

These documents require Adobe PDF Reader. If it is not installed on your computer, click HERE to download.

You also could submit a Letter to the Editor to your local newspaper to promote awareness and support of the Medical Foods Equity Act. Below are two sample letters to get you started.

Letter to the Editor Sample 1

Letter to the Editor Sample 2

Visit this BLOG, started in California, for more momentum!