Thank you for helping us “Make PKU History” in Cherry Hill, New Jersey in late July.
It was both an honor and a privilege to see more than 525 attendees, sponsors, and exhibitors gathered in one place. Thank you all for your participation, encouragement, and commitment to the National PKU Alliance.
Conference Topics IncludeD:
- Latest PKU Research Breakthroughs
- PKU at the National Policy Level
- PKU and Executive Function
- Insurance Reimbursement
- Maternal PKU
- Strategies to Improve ADHD Symptoms
- Successful PKU Management
- Transition to Adulthood
- Networking and Social Opportunities
- And Many More!
Virginia Schuett, MS, founder of PKU News, author of several cookbooks, and low protein food list
Phyllis Acosta, MS, DrPH, RD, renowned dietician who in the early years created recipes with one of the first commercially available formulas and taught individuals and families about the PKU diet
Louis Woolf,PhD, PKU Pioneer, is known for first publishing the idea to treat PKU with an amino acid formula
If you would still like to fill out a conference evaluation click here to download the form and mail it to us at NPKUA, PO Box 501, Tomahawk, WI 54487. We would enjoy having your thoughts and feedback as we plan our next conference. If you would like to be included on conference planning please let us know.
What Was New For 2012!
Adult PKU & Guests Dinner PKU adults and their spouses or significant enjoyed a fun evening out. Everyone enjoyed a low-protein meal and had a chance to meet and talk with one another on Friday evening. The cost was $35 for first person; $15 for second person.
Kids ZoneThis supervised children's program included fun activities, crafts, kid-friendly sessions, swimming and a field trip to the Adventure Aquarium.
Scientific Poster Session This session allowed attendee's to learn about the latest PKU studies one-on-one with researchers. The attendee's walked through the poster displays and had the opportunity to stop at any research poster to learn the information first hand and ask questions.