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The NPKUA currently has six committees that provide leadership to the organization. If you have any experience or interest in any of these areas, we would love to hear from you!
Advocacy This committee advocates for favorable PKU local and national legislation and insurance coverage. It also works on newborn screening issues related to PKU. Advocacy Committee Chair, Kelly McDonald
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Funding This committee works on raising money for the organization for programs, operations, and research. Funding Committee Chair, Bonnie Brady
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Membership This committee is responsible for nominating at-large members of the Board of Directors and recruiting members. Membership Committee Chair, David Donatucci
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Personnel This committee establishes criteria for the hiring, performance, and evaluation of NPKUA staff. Personnel Committee Chair, Tanya Drake
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Public Relations This committee works with professional firms on public relations. It also serves as the Launch committee, and is responsible for communication between NPKUA and state organizations.
Scientific Advisory Committee The goal of Scientific Advisory Committee (SAC) is to promote advances in the treatment and management of Phenylketonuria, with the long term goal of facilitating the development of a cure. This committee also solicits and reviews research proposals and works with researchers to pursue projects or modify existing projects to benefit those with PKU. Scientific Committee Chair, Mike Franklin
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