The NPKUA is committed to building a national awareness. We encourage local organizations, volunteers, and donors to come together to coordinate walks, runs, golf tournaments, picnics and camps to spread PKU awareness and raise funds for research because these events benefit you personally.
It is these types of local events that have funded the academic research that has led to the commercial development of more treatment options for PKU – including Kuvan, PEG-PAL and GMP. These advancements exist because adults and families came together on the local level to fund the work so these innovations could be picked up by industry leaders.
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