The NPKUA is committed to building a national awareness. We encourage local organizations, volunteers, and donors to come together to coordinate walks, runs, golf tournaments, picnics and camps to spread PKU awareness and raise funds for research because these events benefit you personally.
It is these types of local events that have funded the academic research that has led to the commercial development of more treatment options for PKU – including Kuvan, PEG-PAL and GMP. These advancements exist because adults and families came together on the local level to fund the work so these innovations could be picked up by industry leaders.
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Take the 48 Hour Phe Challenge!
In honor of PKU Awareness month take the initiative to help spread the word about PKU.
Why not challenge yourself or someone you know to take the 48 Hour Phe Challenge. What great opportunity for those without PKU to walk in the shoes of someone with PKU if only for two days. All you need to do is follow a low-Phe diet for 2 days! Follow your friend or family member's diet for 48 hours. To make it easier you can even find low-Phe recipes and diet tools at PKU.com. When you have completed your 48 hours challenge click here to take a short 5-question survey to share your experience. After you complete the survey BioMarin will make a donation in your name to the National PKU Alliance!