There are several good resources available for you to share with your child’s teacher.
An Educator’s Guide to PKU is for teachers to help support children with PKU at school. Developed in the Division of Metabolism and Genetics at Boston Children’s Hospital, with input from teachers, students, and parents, the guide includes helpful information about low-Phe nutrition, common learning challenges, and guidance for educators, resources to find additional information and support and more.
Genetic Education Materials for School Success (GEMSS) is a website created for teachers, therapists, counselors, parents and schools so they can best support students with genetic conditions. They have a separate section on PKU. The site has a number of useful tools and tips for educational and classroom support, dietary needs, field trips, sports and much more.
Many school districts will put together a special health care, 504 plan or IEP to ensure that your child’s PKU is managed at school in a consistent way.
A sample health care plan can be found here.
A sample 504 plan can be found here.
To learn more about your rights and the requirements of public schools to provide school lunch, please click here.
To contact the USDA program in your state for additional assistance in ensuring that your child’s nutritional needs are met while at school click here.