Kristen Vanags, Committee Chair
This committee seeks to achieve the following: (a) enactment of PKU friendly legislation; (b) coverage by insurance companies for treatment; and (c) aligning with support groups for related metabolic disorders to promote common goals. Members to assist with our efforts through making phone calls, drafting advocacy materials and assisting with calls to action to the PKU community.
Adult and Teen PKU Committee
Sarah Foster, Committee Co-Chair
Annaliese Martinec, Committee Co-Chair
This committee provides information and support for adults and teens living with PKU through the Adult and Teen PKU Program. This program provides a one-stop resource for adults and teens seeking to improve their quality of life.
Scientific Advisory Committee (SAC)
Mike Franklin, Committee Chair
The SAC is made up of individuals whose goal is to promote advances in the treatment and management of Phenylketonuria, with the long term goal of facilitating the development of a cure. The SAC provides input on the direction of PKU research initiatives, assists with grant award programs and development of education/outreach, and contributes to PKU communications.
Fundraising and Membership Committee
Christine Brown, Executive Director
This committee has two main goals. The first goal is to raise funds for the organization for research, programming, and operations. The second goal is to promote and provide a unique benefit service to our members. Jointly, these goals provide annual revenue support for the organization.
Katrina Swenson, Committee Chair
The Publicity Committee works to promote the NPKUA and raise awareness of PKU. This is accomplished through many avenues, including mail, email, the website, social media, and more. Members will also ensure that messages use consistent language and brand standards.