The National PKU Alliance works to improve the lives of families and individuals associated with PKU through research, support, education and advocacy, while ultimately seeking a cure.

The NPKUA was formed in 2008 by parents, grandparents, and individuals across the country just like you.

We are the first national non-profit organization to unite adults, families, regional and statewide PKU organizations, the medical community and PKU-friendly businesses to make a difference in the lives of people with PKU.

Click here to learn more...>
TAKE ACTION NOW:
COVERAGE FOR MEDICAL FOODS

Click here for the story...>

NATIONAL PKU ALLIANCE ANNOUNCES RECIPIENTS OF 2014 RESEARCH GRANTS AND FELLOWSHIP Read more...>

NEW ON-LINE FOOD LIST AVAILABLE FROM PKU NEWS 
Read more...>

NPKUA ADULT PROGRAM
Click here to learn more...>

NPKUA TEEN & ADULT WEBSITE
Visit AdultswithPKU.org...>

In-District Advocacy Push

Join the National PKU Alliance to play your part in our democracy! In August, all members of Congress will be in their home districts. We want to take this opportunity to have everyone in the PKU community meet with members of Congress and encourage them to support the Medical Foods Equity Act. 

It's as simple as one, two, three. 

  • Oneclick here to find out who are your members of Congress. 
  • Two - click here to download the phone script to schedule your appointment.
  • Three - click here to print off the MFEA flyer to bring to your appointment.

For additional information you can check out our Advocacy Webinar slides here.

|