The National PKU Alliance works to improve the lives of families and individuals associated with PKU through research, support, education and advocacy, while ultimately seeking a cure.

The NPKUA was formed in 2008 by parents, grandparents, and individuals across the country just like you.

We are the first national non-profit organization to unite adults, families, regional and statewide PKU organizations, the medical community and PKU-friendly businesses to make a difference in the lives of people with PKU.

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COVERAGE FOR MEDICAL FOODS

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NATIONAL PKU ALLIANCE ANNOUNCES RECIPIENTS OF 2014 RESEARCH GRANTS AND FELLOWSHIP Read more...>

NEW ON-LINE FOOD LIST AVAILABLE FROM PKU NEWS 
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NPKUA ADULT PROGRAM
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NPKUA TEEN & ADULT WEBSITE
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Do you struggle with managing your PKU? If so, then the Prism 301 clinical research study may be an option for you. The main purpose of the Prism 301 study is to see how safe and tolerable an experimental enzyme substitution therapy called PEG PAL is for adults with PKU.

People with PKU may be eligible to participate if they:

  • Are 18 to 70 years old
  • Have a diagnosis of PKU with a high Phe level (so that we can see if PEG PAL works to lower your Phe level)
  • Have not received PEG PAL 

Participants in the Prism 301 study will receive PEG PAL and study-related tests and procedures at no charge. In addition, participants may receive reimbursement for travel expenses. The information learned from the study and your participation may help improve treatment options for people with PKU in the future. To learn more about this study visit www.prism-pku.com.

May is National PKU Awareness Month

We are excited to share with you many great ways to celebrate PKU Awareness Month!

The NPKUA is running several contests during the month of May. You will get many opportunities to win great prizes like $25 Cambrook Food gift certificates, Nutricial Low-Protein Gift Packs and PKU Awarenss t-shirts, bracelets and window clings. Plus enter to win the Grand Prize: A Free 2016 NPKUA Conference Registration! Check out our Facebook page for more information.

Don't forget to check out the following:

PKU Awareness is important year round, but the month of May is especially dedicated to raising the awareness and support for PKU. We thank you for your enthusiastic devotion to the NPKUA and PKU Awareness. Together we can make a difference in the future of PKU!



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