Welcome to the National PKU AllianceThe National PKU Alliance works to improve the lives of individuals and families associated with PKU through research, support, education and advocacy, while ultimately seeking a cure.HELP US INCREASE COVERAGE FOR PKU!The NPKUA is collecting PKU Health Stories in an effort to increase food and formula coverage for PKU. Click here to help.. Please download and email the form to Kelly McDonald at: kelly.mcdonald@npkua.org or fax to 715-453-7670. Click here for talking points you can share with your elected officials.BECOME A MEMBER!!
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Scott Pelley from 60 Minutes has recorded a Public Service Announcement to help locate and guide individuals who need support with PKU. This PSA will air on radio stations throughout the country throughout May and June. Click Here to listen to the PSA. Looking for more information on PKU and PKU management? PKU is a serious genetic disorder that can cause severe damage to the brain if not carefully managed throughout a patient’s lifetime. Thanks to new and ongoing research, patients now have more options for controlling Phe levels including medicine, low protein diets and low protein formula. For the latest information regarding PKU management and treatment options and additional resources, click here. Check out the Grandpower Website at www.GrandPowerNPKUA.orgInaugural NPKUA National Conference!The NPKUA is planning its first ever National Conference, "High Hopes," which will be held in Dallas,Texas January 15-17, 2010. Click here to pre-register and we will send you information when it is available. Would you like to buy a 2009 PKU Awareness T-shirt?Send an email to: tara.ketterman@npkua.org with shirt sizes and your address. Cost of shirts are $10, which includes shipping. Click here for a picture of the shirt. |
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